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    • Anderson, Rebecca RRemove Anderson, Rebecca R filter
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    • David, Karen L1
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    • Saal, Howard M1

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    • Genetics in Medicine1

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    • disclosure1
    • genetic testing1
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    ACMG Statements and Guidelines

    These online statements and guidelines are definitive and may be cited using the digital object identifier (DOI). These recommendations are designed primarily as an educational resource for medical geneticists and other healthcare providers to help them provide quality medical genetics services; they should not be considered inclusive of all proper procedures and tests or exclusive of other procedures and tests that are reasonably directed to obtaining the same results. Please refer to the leading disclaimer in each document for more information.

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    • ACMG Policy Statement
      Open Archive

      Technical report: ethical and policy issues in genetic testing and screening of children

      Genetics in Medicine
      Vol. 15Issue 3p234–245Published in issue: March, 2013
      • Laine Friedman Ross
      • Howard M. Saal
      • Karen L. David
      • Rebecca R. Anderson
      • the American Academy of Pediatrics; American College of Medical Genetics and Genomics
      Cited in Scopus: 307
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        The genetic testing and genetic screening of children are commonplace. Decisions about whether to offer genetic testing and screening should be driven by the best interest of the child. The growing literature on the psychosocial and clinical effects of such testing and screening can help inform best practices. This technical report provides ethical justification and empirical data in support of the proposed policy recommendations regarding such practices in a myriad of settings.Genet Med 2013:15(3):234–245
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